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Saturday, November 23, 2024

Rep. DeBoyer Resolution Brings Awareness to Rare Disorder

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State Rep. Jay DeBoyer | Michigan House Republicans

State Rep. Jay DeBoyer | Michigan House Republicans

An approved resolution introduced by state Rep. Jay DeBoyer aims to raise awareness about Angelman syndrome, a rare neuro-genetic disorder that impacts thousands of people worldwide. House Resolution 187 designates February 15th as Angelman Syndrome Awareness Day in the state of Michigan.

Angelman syndrome is a condition that affects approximately 500,000 individuals globally and occurs in one in every 15,000 live births. The disorder shares symptoms and characteristics with other conditions such as autism, Cerebral palsy, and Prader-Willi syndrome. This similarity often leads to misdiagnoses, making it crucial to educate the public and medical community about Angelman syndrome.

State Rep. Jay DeBoyer, who represents areas of southern St. Clair County and northern Macomb County in the 63rd House District, emphasized the importance of raising awareness for early detection and support services. He stated, "It is critical to the success of research and support services to raise awareness amongst the general public and the medical community about this syndrome."

DeBoyer's resolution serves as a catalyst for starting conversations and increasing public knowledge about Angelman syndrome. By declaring a specific day dedicated to raising awareness, the hope is to shed light on the challenges faced by individuals with the disorder and their families.

During the House session where HR 187 was approved, DeBoyer was joined by a group of Angelman syndrome advocates, led by Clay Township resident Leticia Dusing. This gathering of individuals dedicated to raising awareness demonstrates the commitment of the community to support those impacted by Angelman syndrome.

The resolution reflects the need for continued efforts to improve early detection and access to support services for individuals with Angelman syndrome. By acknowledging February 15th as Angelman Syndrome Awareness Day, Michigan takes a step forward in recognizing the impact of this rare disorder on its citizens.

Through the advocacy and dedication of individuals like Rep. Jay DeBoyer and the Angelman syndrome advocates, progress can be made in furthering research, support, and understanding of this complex disorder.

Overall, the approved resolution serves as a reminder to the public and medical community to remain vigilant in recognizing and addressing the unique challenges faced by individuals with Angelman syndrome. By increasing awareness, we can work towards a more inclusive and supportive society for those affected by this rare disorder.

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